May 15, 2013

The latest test results are back and at my reassessment appointment today we discussed the treatment plan for the coming year.  As part of my Lyme treatment, we have been addressing any issues that keep my body from being strong enough to win the fight.  Last month we did big picture tests like we did at the beginning of my treatment.  A year down the treatment road, here are the things that are needing to be addressed:  metal toxicity, food allergies, blocked lymph areas, and a couple of pre-cancerous areas.

So today I started a huge shift of treatment towards detox, detox, detox.

Getting all my systems to function correctly and not be blocked by toxins, will enable my body to continue to war against the Lyme bacteria.

The metal toxicity has made a few areas of my body quite weak.  I will be able to measure the success of detox because there will be a marked difference in my daily functioning.  Looking forward to overcoming this!

This month’s treatments will be about $300.  That is much less than usual.  Praise God!

The latest test also showed a pre-cancer issue for breast cancer.  Now I’m saving up for a Breast Cancer screen and Breast Thermography.  Those tests will help my doctor to see the extent of the issue.

I gained a few new food and cooking restrictions this month.  First, no more metals.  No alum foil, no alum pans, no Teflon, no canned food, no metal-contaminated fish, no shellfish.  Second, only purified no-metal water.  So we need to get a water purification system for our kitchen sink.  She said if I mention a doctor referral we’ll get a $200 discount.  I’m afraid of how much a system is that can afford a $200 discount.  haha!  Third, no oats.  Um, what?!  Oats is all I have left in the grain department.  I have porridge every morning.  But she only had standard oats for my testing.  Next month we’ll do a specific test with my GF oats just to make sure.  Here’s hoping the Trader Joe’s GF Oats truly are GF.  Pretty please Trader Joes.  Please have perfectly GF Oats!

My system is not getting enough oxygen and so I need to increase exercise.  Local friends, want to come be my walking buddy?  Three times a week in my neighborhood.

All in all, this month appointment was a positive one.  We are now addressing issues that are deep down.  The past year we chipped away at the surface issues and now the heavy-duty work can be done.  This is a marathon, not a sprint.  We’re 1/3 of the way there!  Yay!

DIET

NO LIST:  Gluten, Cow-dairy (can have goat products), Soy, Yeast, Sugars (no honey, no agave, no maple syrup, no fructose etc.), White rice, Fermentation and alcohol, Mold-containing fruits (e.g. melons, berries, grapes), Stone-fruit (cherries, peaches, apricots etc.), Citrus, Canned food or metal-contaminated, possibly Oats

YES LIST: Nuts (& Nut Meal Flours & Nut Butters), Vegetables, Chicken, Eggs, Corn, Legumes (dry not canned), Almond Milk, Stevia, Coconut Sap “Sugar”, Goat Yogurt & Cheese, Flash frozen Berries, Cooked Apples, Pears, Peanut Butter, Coconut Oil.

_ _ _

People have been asking how they can help.   Thank you so much.

You can donate via PayPal using the button above.  Or if you know me personally you can call the clinic and give directly into my account (you’ll find the info on my facebook account).

My current costs are: approx $250 – $700/month

HUGE thank you to a dear friend who is contributing to my treatment payments.  I am totally overwhelmed by your generosity and extreme giving.  I am humbled and in awe. Thank you.

Saving up for:
– Thermography scan: $600
– Breast Cancer screen: $250
– Kids to be tested: $290/each
– Hubby to be treated: approx $300 – $1000/month

Other ways to help:
– Pray pray pray for miracle healing
– Grocery gift cards to Freddies, Safeway, Trader Joes or Wholefoods
Watch the kids while I’m at appointments (weekly)   Huge thank you to a dear friend who watches the kids each week! You are constantly going above and beyond to invest in my life.  I am amazed by your love.  Thank you.

_ _ _

April 18, 2013

I’m officially a year into treatment!

This month’s checkup was good. My body continues to fight the bacteria.  And my doctor keeps working on keeping my body strong enough for the fight.

There are some ongoing issues that my doctor is focusing on this month.  It is exciting that my body is strong enough to cope with more intense treatments.

God is my healer!!

January 30, 2013

This month I’ve had a flare-up of pain and other symptoms.  A good reminder of how much improved I have been.  I have a reassessment appointment tomorrow and hope to get some relief from the symptoms.

There are a myriad of reasons why Chronic Lyme Disease is not being treated by mainstream medicine.  Something major is going to have to happen in order for research and medicines to be developed.  This article presents some of the issues surrounding the Lyme fiasco.  http://healthfreedoms.org/2011/07/01/why-doctors-cant-acknowledge-treat-or-cure-chronic-lyme/

There is a general lack of hope in the Lyme community.  The past few months there have been many funeral notices via a local Lyme e-support-group.

Praying for my healing and also for a cure.

_ _ _

December 4, 2012

Today’s reassessment was a major milestone:  It was my first positive assessment!  No new co-infections found.  No new issues AT ALL.  My immune system is nice and active.  My digestive and detox functions are good.  My body is fighting the bacteria… and winning!  This is the goal of my non-antibiotic treatment: For my body to fight the bacteria.  All the treatments I am getting are aimed at reducing the strength of the bacteria and boosting the strength of my body’s fighting functions.  Today my doctor smiled a lot.

The treatment will still take 3 to 5 years but today’s positive assessment is a huge win.  We are beating this awful mutating bacteria.  I will not die from it as some are.  I will not be bed-ridden as some are.

Thanks to this amazing doctor and my amazing Yahweh God, I am beating the odds.

Happy, happy day!!

This month I will start IV therapy to boost the detox process.  Months ago, I could not have withstood this kind of treatment.  The stronger and healthier I am, the more aggressive we can be in the treatments.

I am so excited.  Praise God!

_ _ _

June 25, 2012

For five years I’ve had some strange symptoms including numbness, muscle atrophy, neck pain, head aches. I did a tour of specialists who did various tests including MRIs, CT scans and EMGs. Last year my GP started testing for auto-immune diseases. Along the way one of docs suggested “off the record” that I consider seeing a local ND who is well-known for finding answers when no one else could.

I started seeing that ND in April. My diagnosis includes multiple issues. 1. several bacterial infections, 2. mold, 3. low immune system due to a key bacterial infection.

This key infection is by a fairly unknown bacteria. Officially it doesn’t exist and there seems to be quite a battle in the medical community about it. Because it’s not an official disease there is not a standard name that is used. Some times it’s called chronic lyme or post-lyme. (If you’d like to know more about chronic lyme: http://www.lymedisease.org/. There is also a documentary called “Under Our Skin”. It’s on Netflix in the US.)

The Lyme bacteria is a bugger to rid of. The mainstream medical treatment is three to five years of intravenous antibiotics. Insurance does not cover the treatment.

I am going the natural route. The treatment is still three to five years but it is less expensive and can be focused (whereas antibiotics kills good bacteria too). Insurance does not cover this treatment either.

  • I was bitten by a tick in 1986 during a school camping trip. Since then I developed asthma, migraines, food allergies, joint pain and the more recent symptoms described above. All of those can be connected to the bacteria.
  • The reason why it’s 2 – 3 years is because the life cycle of the bacteria is 1.5 years and treatment for bacteria is 2 to 3 life cycles. (e.g. strep throat has a 3 day life-cycle so 10 days of antibiotics kills 3 generations)
  • The Lyme bacteria infiltrates each system of the body. Blood, organs, nerves, muscles, joints, brain. All of my systems have been affected.
  • My treatment changes every two to three weeks as the bacteria is a mutator. It changes to avoid being killed. So my doc is chasing it as it changes.
  • The bacteria feed off certain things so my diet has been modified. I am to eat free of gluten, dairy, soy, sugar, fermentation, and mold. (Mold is found in fresh berries, melons, grapes etc.
  • There is a side effect: As the bacteria dies it sheds a toxic shell. I’m on a detox program to help flush out those toxins. The toxins make Lyme patients quite ill.

God is so good. In the past 2.5 months of treatment I have phased off my long-term asthma steroid. I have also phased off seasonal allergy meds. Both of those issues are gone! My chronic digestive issues are gone too! Also last month I started a part-time job to help pay for my treatment! God is providing.

3 responses »

  1. We’re just gluten free & dairy free in this house, and it’s nearly killing us some days. We cheat on the dairy part all the time. 🙂

    I want you to know that I pray for you every time I think of you!

  2. Wow, so you have been battling this problem for 26 years?? i’ve known you for 10 years and have seen your trials. it’s good to finally have a diagnosis so you can deal with it . i love you so much, my dear friend. May the power of the Holy Spirit come upon you and heal you today!! love and kisses. n

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